More and more people are turning to diabetes support groups to cope with some of the difficulties associated with the condition--both online and in their neighborhoods. A 2001 study found that nearly 48,000 Internet users visited diabetes support and discussion groups over a 21-month period, spending an average of about 15 minutes. What were they hoping to gain?

Most of the postings addressed, the emotional impact of the disease, how to control blood glucose levels, and diabetes complications. Over 40 percent visited these online diabetes support forums more than three times. Nearly eight out of 10 respondents found that the groups had positive effects on coping with diabetes.

The American Diabetes Association (ADA) encourages participation in diabetes support groups. When you have a chronic disease, connecting with others in the same situation can help you feel less alone. But, there are many other benefits of diabetes support groups:

  • Get practical tips for coping with problems and daily life.
  • Share diabetes recipes.
  • Share your emotions without fear of being judged.
  • Lighten the stress of living with or caring for someone with diabetes.
  • Learn about the latest diabetes medications, benefits and side effects.
  • Stay on top of the newest diabetes research and treatments.
  • Get info on the best doctors and treatment centers.
  • Find support for diabetes-related complications such as amputation, addictions or death.
  • Gain insight on how to be a better caregiver or advocate for your child with diabetes.
  • Have a support network during times of crisis such as surgery or bereavement.
  • Acquire diabetes-related financial advice, such as special drug plans.
  • Get information from guest speakers.

To find a diabetes support group in your neighborhood visit the ADA's What's Happening Locally. If you can't find one in your area, you can start your own, or join one online.

Diabetes Support Group Etiquette

Once you join a group, you should make the most of it. The ADA offers some advice on support group etiquette and participation:

  • Learn the rules of the group - how often they meet, membership costs, required attendance, and expectations of you as a member - to determine if it will be compatible with your needs and personality.
  • It's natural to be nervous at first. Don't be afraid to join a group if it sounds like it will be useful. Over time, you'll feel more comfortable.
  • Don't drop out after one meeting. Attend several meetings to get a better idea of whether the group is right for you.
  • Prepare for meetings - have a goal, questions or make a promise to welcome a newcomer.
  • Treat all group members with respect and don't repeat private information outside the group.
  • Don't feel pressured to speak or to share personal information that you're not comfortable sharing.
  • Accept other members' feelings and experiences without judgment.
  • Don't hog the discussions; allow others to speak.
  • Feel free to get a second opinion on any information you receive at diabetes support group.

Study Reference

Journal Name: Diabetic Medicine, Vol. 18 Issue 2, Pages 154 - 158

Study Date: 2001

Study Name: What attracts patients with diabetes to an internet support group? A 21-month longitudinal website study

Website:

Authors: J. F. Zrebiec and A. M. Jacobson